Weekly Happenings

• Things have been stressful these last few weeks…that is putting it nicely.
• I got to go out by myself Monday morning for several hours. It was fantastic! The weather was nice, the sun was out and I cranked the music up in the car. I can’t think of a better way to start the week. I needed that.
• Little Man is now the proud owner of his own handicap place card for the car. His momma sure is happy!
• Grayson has had his first fever  this past Monday at 16 months! (Yay for momma’s milk!!) Turns out his has Roseola.
• Little Man has a cold that has kept him in his bed connected to his oxygen since last Tuesday. He has finally turned the corner we think after having to do nebulizer treatments around the clock and antibiotics. At least we managed to keep him out of the hospital.
• I let go ( or fired) an entire pharmacy this week. Among many issues, they tried to convince me that I could substitute one drug for another one for little man. I am not stupid…I can read. We are writing a complaint to the company. I feel so much better since we made this decision.
• Little Man sat up for 10-15 seconds yesterday by himself!!!
• Grayson is talking up a storm. His favorite words this week; no, Nemo, turtle, thank you, and Jesus.
• We  only had to go  the hospital once this week!! Amazing! We have been averaging at least 2-3 visits per week for a few months.
• I had no nurse on Thursday and Friday of this week. Me and the boys managed just fine. I actually liked the time alone with them. While I do love the nursing help(Little Man’s care is quite daunting at times ), it can get draining having someone if your house all the time. 
• Last Sunday, we as a family, took the day off.  We cancelled the nurse, and just spent time with the kids. We went to the zoo and spent time together as a family. We needed that. We have had to many stresses and challenges thrown at us this past month.

Friday Review

A Friday review of the week...

• Grayson loves fried rice and will shovel it into his mouth by the handful.
• Due to the summer heat, our house is heating up in the late afternoon and not cooling off until late in the evening making it very difficult for Little Man to exist outside the confines of his room.
• Due to the summer heat, it looks like Little Man's social worker is going to help us out with a new window unit to help cool the house down. Yay!!
• I am officially tired of training home health nurses...enough said.
• Grayson and Little Man had a great play date today.
• We found out that Little Man had three different types of bacteria growing in his ear. Poor boy! We finally got it under control and he is able to wear his hearing aids again since his ear infection has cleared up.
• I learned that anytime Little Man needs an infusion, I should plan for an all day stay at the hospital. Goodness!! What a long day that was. 
• I actually made dinner everyday this week except for today(don't judge, it's Friday and pizza night).
• Our social worker paid a visit to us this morning and declared that Little Man is doing great.
• Grayson is absolutely in love with his mommy lately and wants to be close to her at all times. God bless that boy!
• I was pleasantly surprised to find Little Man sleeping on his stomach  on Tuesday morning. We officially have a rolling boy in the house!

Until  next week..

Crying and Cuteness

Grayson is going through a phase right now that any time I step out of his sight he screams and cries for me. By the end of the day I feel completely touched out and so tired of hearing any type of screaming. But, I do take secret pleasure in knowing that he needs his mommy...although I don't know how long that great pleasure will last ;)

In other cuteness news...I am watching little man on his video monitor and instead of sleeping as he should be, he is playing peek a boo with  his blanket while smiling away. Goodness he is way to cute for his own good.

Here...

Recently I saw an old high school classmate of mine. I don't remember her name but I did recognize her face and I saw that she had three children. Her children looked to be school and preschool age. And then it hit me, here I am standing around with my two beautiful boys and I am so happy, but my school age little one is not with me. I should be like her. All three of my kids here and healthy. It hit me like a ton of bricks...how did I get here???

Faith.

Well....

I have finally figured out what has kept me away from this blog for so long. I feel like I need to backtrack and get everyone updated on our current daily doings but to be honest I just don't have the time...hence the disbandment of the blog. So  from here on out I am not going to worry about that and just post about topics floating around in my brain. Here goes nothing....

Here I sit…

At the top floor of Children’s Hospital enjoying the view and the lights of the new hospital. I am listening to Little Man’s current DVD of Monsters Inc. and waiting patiently for his trach supplies to arrive.

We have had Little Man home for one month now and we are doing well. We are at the hospital right  now to get his central line replaced with a port. A port will be much easier to manage at  home and have less of a risk for infection. So far everyone at the hospital keeps commenting on how great Little Man looks. It is amazing what a family can do for a child and he has brought some wonderful blessings to us too. We really are doing well. He has gained around a pound since he has been home which is great because weight gain and growth is paramount for him and his diagnosis. He is also getting stronger everyday and we are enjoying watching him grow his developmental skills.

Grayson is doing ok with all the changes but he has become a big momma’s boy lately. He is usually attached to my hip. Thank goodness for my sling otherwise my back would be seriously hurting! (Shhh!I am secretly enjoying his need to be a mommas boy right now) He has decided to start walking lately. He has been fully capable for awhile but he has been taking his time and that’s ok. I am also not pushing him to get on a sippy cup right now due to all the changes in his little world lately. His bottle and his pup pup are his comfort so we won’t wean him off the bottle until things calm down some. We celebrated his first birthday a few weeks ago. I can’t believe he is a year old!! He is truly a miracle. He is so healthy and developing so well.

So right now, here I sit enjoying and loving this season of  life and the new experiences that have come from being a stay at home mom. I apologize for doing such a bad job on keeping the blog updated. I am have been very busy with my babies!!!

Changes

Currently changing the blog around....bear with me.